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ChandieLee

Well-Known Member
Joined
Mar 25, 2007
Messages
649
Reaction score
6
Location
Auburn, Massachusetts, USA
I've been lurking on the forum; I want to post more, but I just feel so shy. I worry about what everyone will think of me; I know that it's silly to think that way. I mean this place has kind of become a second home to me, if that makes sense. Without RO's support, I could have lost Belle when she was horribly ill. I plan to donatemoney when I get the chance.I will also make an honest effort to open up and be my quirky little self here.:weee: I don't know why, but it's really hard for me. I hope you guys don't mind, but I also need to vent. Feel free to ignore it. I'm sorry if it turns out to be really long. Sometimes it just helps to write everything out.

My life is a mess, to put it simply. I'm 21, out of school, I don't drive and I don't have a job, but there's a reason. I'm not lazy bum who's trying to mooch off of my parents. I've been sick for awhile, almost two years. For the first eight months, I had tonsilitis that had gone undetected because my doctor kept testing me for mono. :grumpy:Obviously if it didn't come up positive the first time, it was going to come up positive the second, third or fourth times. Finally she sent me to a specialist (7 months later:grumpy:) who checked me for mono (Ugh) and tonsilitis. After the tonsilitis came up positive, he decided that I should have my tonsils removed. After the operation, I felt much better for about a month or so. That's when the headaches started.

I started waking up with headaches everyday and they'd last all day. They were usually bad enough where I couldn't get out of bed. So my doctor prescribed MRI after MRI, all of them showing nothing. Then she finally sent me to a neurologist, who prescribed yet another MRI :)banghead) which showed nothing, like I already knew it wouldn't. So, the neurologist prescribed a med for the headaches, which actually seemed to work... but wait, there's more. My right side started hurting and it turns out I have Gall stones. The doctor I talked to about that doesn't want to take them out right now because I'm too young. I don't understand that, but whatever. I was told to call him if it became excruciatingly painful. Fine. Whatever. I can do that.

You'd think my body would give me a break after all of that, but no. My whole body started to hurt; my joint and muscles. It turns out I may have fybromyalgia, like my mom. :cry1:I had no idea that it was hereditary.... At one point, the pain in my shoulders became to much to handle, so I was sent physical therapy and it actually helped the pain, however, my insurance would only pay for so many sessions. After the physical therapy, not only did the pain in my shoulders come back, but the headaches too. I tried talking to my doctor about all of my symptoms again, and she was actually very dismissive about. She told me that she didn't see anything wrong with me and that I should talk to my psychiatrist!! :grumpy:She didn't believe that I was telling the truth. She though I wanted attention, but Italked to my psychiatrist anyway, and he believes that my symptoms are genuine. He believes that I'm telling the truth. So, as of right now, I have left that doctor and I am waiting to be seen by a new one.

Most days, I can't get out of bed, but I force myself to for a little while atleast. Taking care of the bunnies is a great motivation for me. Being sick hasn't kept me from spending time with them or cleaning their cage. I believe it's an accomplishment for me, even if it's a tiny one.

Most of my friendships have been damaged though. Alot my friends don't believe me either. And it hurts. I've always been there for them, and alot of them have gotten into alot of trouble, but I've never judged them; I was always here to listen and lend a shoulder for them to cry on. Now that I'm sick, I;m not worth their time, oreffort. I know I shouldn't let it bother me, but it does. They make me feel like a door mat. It's helpful to know that my parents and boyfriend understand though. I'm very lucky to have them.

There is good news though; I'm going to try and get out more, regardless of how I feel. I'm thinking that if I push myself, I'll start to feel better. Optimism can be very healing. I've been taking singing lessons. And they're going great. :)I have an audition for The Worcester Chorus next week actually. They're a professional chorus in my city. I'm very nervous about this audition, yet I feel confident at the same time. I'm also hoping to go back to college in the spring.

I'm sorry this was so long. I guess I just needed to get this off my shoulders before going to sleep. Thanks for reading, as always.



Chandra. :hearts:
 
I am so sorry that you are going thru all of this... I would get a second opinion about your gal bladder because i had mine removed at the age of 19. and it was the best thing i ever did... I hope you feel better soon
 
Wow, what a lot to be going through! :hug:

I have to say, firstly, that I was the same with posting when I first joined here, but you're right, writing stuff down does really, really help, and the times I've posted in here about various things/health problems etc, even before anybody has replied I've always felt 10 times better about it. Plus, we're always here to help, listen and understand :hug: Don't ever feel like you can't talk to us! I joined support forums for my health problems but I much prefer the support of this place... :)

I can't imagine having to deal with all those different illnesses at the same time... I know what it's like to have people not believe you though. I suffer from a balance disorder, and have done for the past 20 months or so, and I've been unable to work for the past year. Some days I find it so difficult to get up, but I try to make it out when I can. My employers, and some of my 'friends' don't believe there's anything wrong with me, and even at times my own parents have doubted me. 'Why don't you just go back to work?' etc etc.... :rollseyes:banghead It's sooo frustrating! Because people can't see something, they just assume it's not real. I always said that if I had a broken leg or something, it would be easier cos people would actually be able to see that and believe it! Also, I only go out on good days, so people see me at my best, not my worst, and therefore don't realise how bad it can really be. I ended up going for counselling a while ago due to the stress of it all, and I learnt that no matter how upsetting it really is, the only person that needs to believe it is you. Now I just keep telling myself that it is true, that I am ill, and I don't need anyone else to believe me for it to be real! My favourite line to a (very bad) so-called friend: 'and you got your medical degree from WHERE, exactly?' Shuts her up every time :p

I totally agree with you about the bunnies though. We got them when I was ill, and it sounds silly to say it, but to keep me company during the day, and they've helped me so much. Unlike the other housework etc I always force myself to clean them out, play with them etc, even if it's the only physical thing I can do all day. I'll save my energy for that. I'd much rather clean bunnies out than do the laundry anyway lol:p The days I can't physically get out of bed, I manage it somehow, and lie on the sofa instead, and watch them playing cheers me up soooo much. Even better when they hop up to visit! :D Bunnies are great healers, and as someone here once said, definately good for the soul :)

I'm so sorry you're having such a hard time at the moment, and I really hope things will pick up for you soon. The singing lessons sound like a great idea, I'm glad you've got something good to focus on.

:hug1

Jen xx

P.S Sorry for the essay! :shock:
 
I don't have much time, but pm me about fibromyalgia. I have it and so does my husband and his sister. What we do that helps: Tramadol during the day (mild opiate), cyclobenzaprene at night (muscle relaxant), sometimes certain antidepressants help because it's a neurological issue, and for energy you can either take pills for extra B vitamins, ginseng, and taurine or drink energy drinks that have all that. Helps a ton with fatigue and dizzyness. I get them cheap at Big Lots. Also, have a set sleep schedule with a full 8 hours (but don't oversleep either) and do low-impact exercise like walking or yoga, at least in small amounts.

We're currently both working but I had to leave my last job because of the fibro as it required near-constant physical work.

I know how hard it is to deal with this. While still in my last job I was afraid I'd have to go on disability because of how sick I always felt and how much it affected my job.

:hug:
 
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